But I’m alive!
Ugh, okay, more than a month without an update, where should I start.
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Category: Blog
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NoHb, NoLk.
6.something Hb, 0.9 Lk. Yikes!
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Cowabunga!
I was supposed to be over my first day of leukapheresis (stem cell harvest) by now, but life threw a (-nother) wrench.
Based on Monday’s PET scan, I’m in
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Sit rep: R2W3D1
I’m on my good week, time for a little sit rep.
Tomorrow…
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Quick sit rep.
Had a checkup this Monday.
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Out of the grey mist.
(I think) I’m out of the woods for this first round, mostly. Took pretty much exactly a week.
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First round done.
Aggressive chemo is aggressive, but I’m done with the first 4 day round.
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Chemo regimen and where are we.
I have started my first round of chemo yesterday.
The plan now is 2 rounds of 4-day intensive chemotherapy (in hostpital, dripping in 24hrs/day), a protocol called R-DHAP. Yesterday was OK as I only got fluids and the real deal started in the evening. Today is less good, but manageable, I am exhausted like a race dog.
Between the rounds 2-3 weeks of break (unclear to me if 2 or 3), then repeat, then a PET CT and then we see what’s next. I am part of a genetic study now to see if there’s some DNA thing causing me to repeat the fun. Not part of a Karma study yet.